UCL Live Well with Parkinson’s Toolkit
Helping People with Parkinson’s to Live Well
Take Control of Your Parkinson's
- This toolkit helps you manage your Parkinson’s between appointments.
- Improving patient outcomes and reducing unplanned hospital admissions.
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Why It Matters
- Fills a gap in care: A trusted source of information that boosts confidence in managing Parkinson’s day-to-day.
- Greatest benefit for underserved groups: People in rural and deprived areas saw the largest improvements.
What Is the Toolkit?
How It Was Made
- Based on research and interviews
- Designed with patients and health professionals
- Tested in a national trial
What’s Inside
- Clear information on symptoms, treatments, and wellbeing
- Tools to:
- Track symptoms, medication, and activities
- Set and review wellbeing goals
What People Say
“You don’t want to trouble the professionals every time you have a question. So, in that aspect, I am really relying on this toolkit now.”
“The help and knowledge in the toolkit has given me confidence to manage… I have been going through these breathing exercises to help me, and it certainly seems to be very useful.”
Key Benefits
- Better mobility and daily activities
- Improved mental health
- Fewer hospital visits, saving NHS resources
- More confidence in self-management
Toolkit Impact
| What we measured | What we found |
|---|---|
| High Usage | 82% reported frequent use |
| Helpful for Symptoms | 87% found it useful |
| Cost Savings | Saves NHS costs due to lower A&E and hospital admissions |
| Improved Health | Better mobility, daily activities, mental health |
Read the full findings on the UCL website: UCL's PD-Care Study Pages
Ready to Start?
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